Sooooooo alot has happened over the last few days. Monday I did my gene testing. That conversation made my head hurt. It was like a very deeeeeeeeeeeeeeeeep science class. I should have my results back in about 3 weeks. Yesterday I had the joy of drinking some really yummy stuff and having a CT of my abd & pelvis. I suggested that they find a way to add some vodka to it. They could make a Barium martini! MMMMMMMM LOL! Over the next five days I'm going to be tortured a bit. My CT of the chest showed a 1 inch nodule/lesion on the left lung. They are not sure exactly what it is so I will be having it biopsied on Monday. OOOO so DON"T want to do that biopsy stuff again. They assure me they will make it comfortable for me. I'm thinking yea right, before or after the big needle goes through my chest to my lungs. Tomorrow I will be having a out patient surgery to have my port placed so that it can be accessed for chemo. Give me a second... here come the tears.......................................................... Something about this stupid chemo stuff makes this all so hard and SO REAL!
Saturday I will be taking a visit to nuclear medicine for a bone scan. Sounds like fun huh?
My insurance has decided they want to be jerks. They will not cover or approve the PET scan. They say its exploratory. They had also denied my CT of the Abd & chest. They say only if it were for a surgical purpose or if I was stage 5. BUT, my doctor was so kind to call those amazing insurance people and have a very nice and calm conversation with them and to my surprise they have kindly changed their minds about covering some of these tests. Isn't that so WONDERFUL! :) Yeah ME!!!! I get to have more tests.
The oncologist and surgeon have decided to switch some things up on me. They are thinking that I will do chemo first and then the surgery. And I would like to do it the other way around. I want this stuff out of me ASAP!!!
The talk of chemo has me in pure panic and sadness. I'm thinking I should go and get my hair cut and start looking into wigs. My hair is so much a part of who I am. I know its just hair but its easier said than done. I really really really feel for anyone who has had to experience this. Its a very emotional thing for me and it hasn't even happened yet. Just the thought process of it gets me :(
Yesterday I spent most of the day with my grandparents. It was a nice trip. She found it necessary to tell me about all the health issues shes had over the last 80 some years. She should of wrote a book about it. Oh wait she DID! She literally brought out this huge hard covered book and started reading it to me. I couldn't believe it. Not what I really wanted to hear about. Alls I could do was think about what else is in store for me. Anyway she took the kids shopping and they had a blast with that.
Today was the first day of school for the kiddos. Christian is a freshman and my princess is in 4th grade. I can not believe how fast they grow up.
Jesse and I are trying to choose laughter over tears.
The other day when I had my gene testing done we were talking to the kids about what that could mean for them should I have a mutation of either the BRCA1 BRCA2 and or p53 gene. Mariana says wait so your telling me those comfy jeans I like to wear could be bad for me. AHHHHHHH LMAO! I told her..Don't worry hun I'm an adult and I could barely understand it. I spent some time trying to explain the word GENE to her but she wasn't getting it and I wasn't doing a good job of making it understandable to a 9 yr old. She keeps asking me- Where on your body is your gene?
So I'm giving you all some homework. How do you explain genes to a 9 yr old?